Since you asked for updates- I had a big setback.
Since you asked for updates- I had a big setback.
I went to the neurologist this morning and after all of his tests, he said he couldn't find anything neurological that could be wrong with me. He thought it might be behavioral, but that wouldn't explain the morning heaving. He sent all of my records back to the gastro doctor and we'll see what they say when they get back to us. So I'm kind of feeling a bit deflated.
Meanwhile, my mother is driving me insane to the point that I had a minor breakdown in the car while she was yelling at me. I had to repeat over and over that she needed to be quiet and she kept saying things like, “you have so many rules!” Finally, I said, '"these are the code words. If you hear me say the exact sentence, ‘you are making me anxious’ she had to be quiet and count to 30 in her head." She agreed. Angrily. She doesn’t find that reasonable.
She's also quite hard of hearing despite having hearing aids, so I'm having my wife sit in during these evaluations via Facetime so I can tell my mother "the doctor didn't say that" and have someone else agree. It still hasn't worked 100% of the time, but it has worked.
Also, every single time there is a possible diagnosis or she reads something that she thinks sounds like my symptoms (and she's always wrong about that), she decides that's definitely what I have and she definitely knows what should be done about it.
This time it's worse, because she was a psychotherapist and she actually knows a little about behavioral therapy. But I feel really bad for her clients, because they had a totally crazy lady for a therapist. And she kept some of them on for like a decade after she officially retired. They came to her house. So they actually liked whatever she did for them. All I can think is that she has a completely different personality as a therapist.
Oh, she also thinks that the dry heaving every morning is inconsequential and I should just accept that I'm going to have to live with it the rest of my life. What. The. Fuck?
I guess it's been so long since I've spent more than a few hours with her that I forgot how truly nuts she is. And a bit on the narcissistic side.
Edit: Ugh. This fucking guy again.
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I hope they keep looking into it and get something figured out. I assume they're doing basic blood work like a comprehensive blood panel? Autoimmune diseases? Unfortunately, my experience in the medical field is that sometimes if they can't figure it out relatively easily, they sort of give up, and eventually the condition gets worse and becomes more obvious and easier to diagnose.
I've had every test you can imagine.
When I was there, I had a lot of tests... but they never tested for type 1 diabetes, and it turned out I had type 1 diabetes.
I've had that tested elsewhere. I'm only here because every test and even gallbladder surgery has failed.
Sure. I wasn't suggesting T1 was your problem, just that sometimes it's a matter of lucking out on a doctor figuring out what the precise thing is. In my case, it kept going for another year until it was obvious when I went to the ER. Hope they do help you.