Since you asked for updates- I had a big setback.
Since you asked for updates- I had a big setback.
I went to the neurologist this morning and after all of his tests, he said he couldn't find anything neurological that could be wrong with me. He thought it might be behavioral, but that wouldn't explain the morning heaving. He sent all of my records back to the gastro doctor and we'll see what they say when they get back to us. So I'm kind of feeling a bit deflated.
Meanwhile, my mother is driving me insane to the point that I had a minor breakdown in the car while she was yelling at me. I had to repeat over and over that she needed to be quiet and she kept saying things like, “you have so many rules!” Finally, I said, '"these are the code words. If you hear me say the exact sentence, ‘you are making me anxious’ she had to be quiet and count to 30 in her head." She agreed. Angrily. She doesn’t find that reasonable.
She's also quite hard of hearing despite having hearing aids, so I'm having my wife sit in during these evaluations via Facetime so I can tell my mother "the doctor didn't say that" and have someone else agree. It still hasn't worked 100% of the time, but it has worked.
Also, every single time there is a possible diagnosis or she reads something that she thinks sounds like my symptoms (and she's always wrong about that), she decides that's definitely what I have and she definitely knows what should be done about it.
This time it's worse, because she was a psychotherapist and she actually knows a little about behavioral therapy. But I feel really bad for her clients, because they had a totally crazy lady for a therapist. And she kept some of them on for like a decade after she officially retired. They came to her house. So they actually liked whatever she did for them. All I can think is that she has a completely different personality as a therapist.
Oh, she also thinks that the dry heaving every morning is inconsequential and I should just accept that I'm going to have to live with it the rest of my life. What. The. Fuck?
I guess it's been so long since I've spent more than a few hours with her that I forgot how truly nuts she is. And a bit on the narcissistic side.
Edit: Ugh. This fucking guy again.
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I am curious about your daily diet.
Fasting responsibly with plenty of water has been used for thousands of years as a healing mechanism or reset for gastrointestinal issues. Perhaps a hard reset may help and then slowly reintroducing things like organic bone broth and working towards nutrient rich whole foods and vegetables, with lots of water and good sleep.
This is coming from a place of love as I am a fan of Flying Squid.
I am rooting for you. Sending good thoughts your way.
This man is a good resource on fasting if you’re interested— Dr. Dominic Dagostino
My 'daily diet' is Ensure and V8 with the occasional chai latte or root beer.
If I could eat vegetables, I would eat vegetables.
I recall you saying part of the problem you have is hypersensitivity to the scents of various foods. If you can tolerate V8, I'd assume you can consume vegetables in liquid form in general? You could consider getting a juicer and making some different blends. Personally, when I was starving, I tried surviving on protein powders and very soft foods but that wasn't working. Eventually I made chicken broth, chicken and blended it up sometimes with potatoes, corn or rice, and it doesn't sound appetizing but actually worked great and saved me from starvation. I found some neutral tasting protein powders that were good with juice or broth too... pea and hemp worked for me.
I can tolerate V8 if I don't inhale and get rid of the glass/can immediately. It's more of a last resort thing.
Yeahhh, as wikipedia always says: <citation needed>