The worst is when a specialist confidently repeats known false information to you. Like, easily debunked by the most cursory glance at a state health department website type stuff. I have started bringing print outs about my illness from reputable sources to appointments with me just in case.
The worst part of being sick is not my symptoms. It’s having to interface with the healthcare system.
Back when I was first diagnosed I picked up some kind of bug. Nothing serious, but I hadn't learned what to do since I'd been put on a load of complicated sounding meds, so I went to the out of hours GP.
I explained about my illness and meds, and gave him the symptoms of the current illness, and he just gave me a blank stare. After a short while, he asked my wife what she thinks we should do 🤷🏻♂️
Woah buddy! One more step and you're gonna be dangerously close to anti-vaxxer territory. Trust the science heckin' friendo
This isn't about not trusting the science, this is about those doctors who either haven't kept up with their research, or haven't got the sense to be subtle when they need to double check something.
I've got a rare disease, and I've seen way too many of these doctors. The bright side is that they make the good doctors look even better 👍
Or maybe it's about how people are so full of themselves that they believe people should know everything about you before ever meeting you.
Maybe stop being so judgemental when someone has to learn about something before treating you. You'd rather they pretend they're all knowing and treat you when in reality they don't know shit?
No one person knows everything. That expectation will only lead you to disappointment.
